Monday, July 8, 2013
Tracey, John, Luca and Sadie
Sunday, July 7, 2013
AMC conference 2013
It is hard to sum up in words the AMCSI (arthrogryoposis) conference. We left this last Tues and got back last night from Las Vegas, where the conference was held. The hotel was 20 mins outside of the strip near the Red Rock Canyon which was very beuatiful and hot!
A few of my highlights were:
Meeting several adults with AMC that we only knew virtually throught corespondance, facebook or through books read but had never met in real life. A few where, Tracey, Ward Foley "Scarman" and Luca lazy legs.These adults and others with AMC are really inspirational and down to earth. They live indepdant, full, rich lives that gives me great hope and encouragment for our Luca's bright future.
Watching Luca play tag with Sadie (a three year old with AMC), they play the same way.
Playing in the pool as a family and meetting new friends like Graci (a 7 year old with AMC that Luca loved playing with all weekend!)
Talking with parents and watching all the kids play togehter and dance!
I come away grateful for what Luca can do and the LITTLE amount of surgery he has needed.
Talking to a suregeon about a possible muscle transfer for Luca whe he is seven.
Listening to Scarman's inspirational talk.
Straws were everywhere.
AMC talent show.
Luca said, "I use to think there were only a few people with arthrogryposis, now I know there are A LOT of people with arthrogryposis!"
Looking forward to next year in the Twin Cities, MN!
The bathtub in our hotel room, a big hit
The pool
Luca in the desert 110 degrees
John and Luca jumping into the waterfall at the pool
Luca and Graci
Luca found springers
Luca and Sadie at the talent show
Luca and John traded hats on their hike
Luca and Graci
Luca and Luca
Ward Foley and Katie
Sadie and Luca
Luca and Sadie coloring
Juliette ready to hit the pool
A few of my highlights were:
Meeting several adults with AMC that we only knew virtually throught corespondance, facebook or through books read but had never met in real life. A few where, Tracey, Ward Foley "Scarman" and Luca lazy legs.These adults and others with AMC are really inspirational and down to earth. They live indepdant, full, rich lives that gives me great hope and encouragment for our Luca's bright future.
Watching Luca play tag with Sadie (a three year old with AMC), they play the same way.
Playing in the pool as a family and meetting new friends like Graci (a 7 year old with AMC that Luca loved playing with all weekend!)
Talking with parents and watching all the kids play togehter and dance!
I come away grateful for what Luca can do and the LITTLE amount of surgery he has needed.
Talking to a suregeon about a possible muscle transfer for Luca whe he is seven.
Listening to Scarman's inspirational talk.
Straws were everywhere.
AMC talent show.
Luca said, "I use to think there were only a few people with arthrogryposis, now I know there are A LOT of people with arthrogryposis!"
Looking forward to next year in the Twin Cities, MN!
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